| Hi
there, my name is Jenna and I was dx'd with SAA on June 12th last year.
It all went real fast. At first they thought I had ITP a platelet
disorder. Then they decided it was AA. Well I went into Primary
Children's Hospital on the 5th of July. I had only had 7 bags of
platelets by this time. On the 6th was the day of my surgery for my
central line. The 7th we started my ATG.
I had only a tiny bit
of hives and went home on the 12th.I had two bags of platelets in the
hospital. After I got home I had only a bag of platelets a week and
since August 12th of 2000 I have not needed any more. I am still on
those "SKUNK" pills. Boy do they stink! Magnesium and some
sulfa thing to keep me from getting inside infections. I am getting off
of my pills. I started with 12 of those smelly things and I hope at
tomorrows labs I get to get off of another one.
I only have to go have
my labs once every other week now instead of every week and I only have
to go to Primary Children's every other month. WEEHAW! We do not know if
this is going to work for sure. I might still need a transplant. If that
is what I need to do then I guess I will because I just want to be
fixed.
I have Juvenile
Diabetes also. I have had it since I was 1years old. They say I have a
bad immune system because it is an immune system disease also. I just
want to get past this! So I just keep taking my pills. If there are kids
out there my age who want to talk, email me and I will write you back. I
think it would be good to have someone who knew what I was going
through. Thanks, Jenna
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