| History
of hypogammaglobulinemia since my 20's. Had problems with
bleeding when I had surgery to remove adnoids/tonsils when
I was 10 years old. Lots of problems with ear infections,
respiratory infections and digestive track problems which
can be associated with low IgA and IgG in retrospect. HPV
when I was 35 and CA cervix. No chemo or radiation done,
just radical hysterectomy.
Enlarged
thymus - removed 1991. First petechia noted in 1993 -
suspect drug Zoloft. Second petechia summer of 1999 -
suspect drug Lamisil. Third petechia - March 2000 and
hospitalized when blood counts were found to be all below
normal - suspect trigger again of medications - Neupogen
and Macrobid. Diagnosis of mild AA in July 2000 - one
course of Neoral (cyclosporine) and counts rose to almost
bottom of normal ranges.
Taper
completed April 2001 and remission for 2 months - blood
draw on July 9, 2001 showed all counts falling again and
resumed 200Mg Neoral with Magnesium. Having evaluation at
NIH on August 7, 2001.
10/2000
Update: Local
hematologist jumped the gun and specialist had me stop
cyclosporine after 2 weeks. Nothing new found on
visit to NIH in August
and was just a confirmation of my diagnosis. Counts
continue to slowly
degrade. Trigger levels to re-evaluate treatment
options have been set
to WBC 1, or Hb 8 or Platelets 40,000 or below. All
doctors I have seen
want to see if I can maintain without any further
treatment.
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