| MY
story starts in 1994, I was feeling tired and went to the
doctor for some blood tests to find out why I was so
fatigued. It was near Christmas time so I was really busy
and I kept putting it off, finally I went and the doctor
called me to tell me that I was pregnant, AND had really
low blood counts. I was in shock, more about the pregnacy
though because my husband and I were not trying.
I had a
bone marrow biopsy in January and was diagnosed with
MODERATE AA. By my 5th month of pregnacy I required blood
and platlets weekly. I was induced at 34 weeks so that the
doctors could control the birth. My son Linden was born
healthy 6lbs 8oz on July 27th 1995. My brother was then
typed for a possible transplant, he did not match. I then
had ATG that October, I had a minimal response, which put
my counts at a stable level but by no means normal. I went
on with life seeing my doctors every 6 months. In
September of 1999, everything changed. My counts dropped
very low and in December I had ATG again, this time with
no response.
We tried
Eprex injections for two months, and nothing seemed to be
working. I was having blood every 5 or 6 days and my
ferritin was climbing through the roof.( 7500) In August
2000, I was faced with the decision to transplant or not.
It was very risky because of the ATG treatments and the
massive amounts of blood products I had received. The fact
that I was 26 was an advantage, and they found a very good
match for me on the registry. We decided to go ahead and
go for it. I was put on desferal to try to lower my iron
level as much as we could so the strain on my liver might
be less.
On
Valentines' day 2001 I had my MUD transplant, and it was
the best thing I ever did!!!! It is such a personal
journey with decisions that are only your own, but it can
work and work well. I was in hospital for 5 1/2 weeks and
they were hard weeks, but I never gave up I always tried
to find something good about the day, family support and a
positive attitude, you can get through anything. I
wouldn't trade my experiences for anything, this disease
has given me gifts and taught me lessons that I will take
with me always, but best of all in the end I BEAT IT! It's
been a part of my life for so long, I have met some
amazing people and made some great friends along the way,
and the day that I meet my donor will me truly
magical.
I am now
past my 100th day ( boy that felt good) I have had no GVH
and my counts are slowly climbing to normal, I can
rollerblade with my son, and do things I haven't done in
so long, and best of all I haven't had a transfusion since
I was dicharged on March 19th 2001!!!! I will be forever
grateful to the man who gave me my second chance, and
donated his marrow. For all of you in the fight, never
lose hope always look for some good even if it seems so
small. So many people helped me along the way, it's web
sites like this that make a difference and connect us all
together, my prayers are with all of you and your
families. Here is one of my favorite qoutes: " If you
can learn to laugh in spite of your circumstances that
surround you, you will enrich others, enrich yourself, and
more than that, you will last."
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