| Sandy |
DX SAA/LGL |
I have
2 blood disorders. the first one caused the SAA so I am not
sure I am
the best person to base things on. I have LGL, leukemia -
Large granular
lymphocyte and the leukemia is not the fatal type. The LGL is
very rare
which makes it soo diff to know what will work. I do know
another person
with the same thing I have and the cytoxan worked for her !!! I
met her on
the lsitserv- Ali and her hubby Kevin Holder I think. she
is a bit younger
than me.
I could not tolerate the cytoxan. It upset my stomach so very
much !!!!! I
have been thru the cyclosporine, then cytoxan, then ATG, then
methotrexate
and now no treatment. Letting my body chill for a while.
I also now have
iron overload and am on the desferal yet get it thru my port. Many
others
use the soft something needles in their stomachs for 3 days at a
time. I am
6 nites on and one off !!! My life has really changed with
these 2 blood
d/o's. I am already a breast cancer surv of 6 yrs.
the chemo I had in 1995
prob kicked the LGL into action when all my blood levels dropped big
time. I
am always low wbc, platelets and crit.
Not sure I helped you. do wish you much luck !!!
Sandy (56 in Mayland) |
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