From: Daria
Date: 25 Oct 2004
Time: 20:04:01 -0400
Remote Name: 69.47.136.214
Hi Lisa, During the first stages of treatment I too had to play with the cyclo dosage some. I understand that to be quite common as many people absorb meds differently. My first couple of weeks (cyclo) also raised my creatine levels...cyclo was stopped until a normal level was reached again. Dosage began at a lower level and was increased gradually until the CSA level was in the lows 200's. There it had remained until just recently when the added side effect of high blood pressure set in. A benefit, if you can call it that, of the BP med was that it increased the toxicity of the cyclo therefore allowing a reduction in the dosage. My point of this is that it is somewhat of a roller coaster to set the meds right with your body and adjust accordingly. My normal dosage was 350mg daily, currently 250mg. CSA level between 200 - 250 has been the expectation. Hang in there. All continues to be successful for me - slow and gradual uphill climb for the last 14 months. Daria
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