Welcome
to
Aplastic Anemia
Central
where
patients
help
each
other. If this is
your first visit, you may want to read this basic view. You will learn of the successes and failures of many
Aplastic Anemia and MDS patients-some using conventional treatment protocols and others using
alterative approaches. Judge for yourself what is working and take
the time to learn everything you can about yourself, the illnesses and the
approaches used to treat them. If you have questions, please visit the FORUM, an area where patients support
patients or feel free to email me directly at bruce.lande@roadrunner.com
We
use
this site to store everything we have learned about the
autoimmune related illnesses including Aplastic Anemia, Myelodysplastic
Syndromes (MDS) and others. We also conduct an open, free spirited
discussion on what is working and not working at the FORUM. You can
read about others and/or share your personal story.
We are not medical experts, but hopefully our collective knowledge will assist others
in their search for information about Aplastic Anemia treatment programs,
medications and their side effects. Prior to contracting the illness, we
were a pretty normal family. We have done lots of
reading about the illness, conventional and alternative treatments and are happy
to share what we have learned.
Before contracting the illness, I had never taken any kind of medication so it
has been an eye opener to me as to all the side effects and interactions for
which we as patients must assume responsibility. If you are interested in
my personal approach, visit My Story and My
Holistic Alternative Approach to Healing Aplastic Anemia.
Please feel free to participate and
encourage others to do the same. There is also a bunch of personal stuff
here that you are welcome to check out if you want, like Poems, Prayers & Promises,
and Music. Above all, hold on to your hope and maintain a sense of humor
while battling the illness.
Regards and thanks for your
participation.
Bruce Lande, Webmaster
SAA 1/2001 2X ATG Failed, Steroids, Cyclosporine, etc. -
- Cold
Turkey stopped all meds 7/2001
Holistic approach to helping my body heal itself. Macrobiotic
whole food diet, allergy shots, daily sauna, colon cleansing, spring
water, sunshine & exercise. Transfusion free since Josh's DOB,
4/25/02. In November of 05 I started going backwards again and am fighting to get back to normal.
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